Quote:
Originally Posted by Rare Iron
Bill, they DID test for Lyme & it was negative. Her spinal fluid looked perfect & they tested for Meningitis - both bacterial & viral & both negative. Social disease is a negative - she does not have any "boyfriends" at all so I'm not even considering that (don't worry no offense taken). Heavy metal poisioning I can't say for sure, but they supposedly considered everything & tested for all possible causes, & they have concluded a Pseudo Tumor. Here is a reply from a "brain scientist" from another forum I posted on:
It sounds very much like pseudotumor cerebri. For some reason this condition is more common in young girls than boys and specifically, girls of jewish origins.
It is related to reduced ability of absorbing cerebro-spinal fluid which leads to a build up of the intracranial pressure. Typically, it resolves itself but sounds like your daugther needs further evaluation and potentially a neurosurgery which will place a pressure regulated shunt to drain excess CSF.
Anyway, thanks for your input everybody. I'll post significant updates as they develop.
-Eric
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With the Lymes test; they should do a few & send to various labs. This was on the mystery diagnosis show. They said that the blood had to be caught just right or something like that & that it may not show in every vile.
While you say she's not sexually active; she still should be tested. We can't be with our kids 24/7 & they may not be honest with us.
Quote:
Originally Posted by Rare Iron
Anyway, she still has some headaches, but sometimes they are totally gone. She successfully completed a day at school on Friday. She had gone in about 10 days earlier, but during 3rd hour the headache came back full-force - enough to put her into tears. She has gained back the weight she lost (about 11 pounds), & seems almost back to normal. I think the doctors are baffled. They now think the high pressure that was experienced during her spinal tap was a false positive - it can happen if the patient moves or is in the wrong position during the procedure. If there was still a high pressure in her spinal/cranial fluid, it would show in the eye exams. She also still has the rash or red spots! She went to our dermatologist on Thursday & he said it was a reaction to the Diamox from several weeks ago - still hanging on! She also has a "water rushing" sound in one of her ears - this has not been explained by anybody so far. Our next step is to take her to a pediatric neurologist at U-M for further evaluation - we are waiting for an appointment.
In conclusion, she IS much better - & we don't know what it was, but there are the few lingering issues. We hope to see her get totally better soon & have no lasting effects. It still bugs me though - WHAT WAS THIS?
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Has she had the Gardasil vaccine? This is a typical side effect of it.
What about any other vaccines?
I agree with the chiro.
Also; does she have her wisdom teeth? My daughter complained for a while; we were moving; she had an orthodontist; I guess no one listened to her; thought it was just the braces/rubber bands until she ripped her braces off; xrays were done & all 4 were impacted pretty bad.