[tcrist]

Fred,

Sorry that it took me so long to get back to this post. I have had a few health issues and other things that came up.

As for Bristol, she is doing real good. She still has some siezures but no where near as many as she had before. The meds that she is on now are helping her a lot more than some of the others that she has been on. She is stiiing up by herself and feeding herself handfood. Unfourtunatly (sp) she will have to deal with this for the rest of her life. Bristol now has a little sister Jamie. Thankfully, Jamie has none of the issues that Bristol has.

The foundation is having some good progress. They have been able to replicate CDKL5 in mice so now they can work more on treatment.

Again thank you for your help and thoughts.

Terry