My Daughter's Mystery Illness - HELP!

[olddog]

I am not in any way giving medical or legal advise, nor am I qualified to do so. I speak based off of common sense and my 53 years of life experience.

First, it seems to me that before using IV pain medication, a cat scan and perhaps an MRI should have been done. Certainly should have on the 2nd trip.

All I can say is a family member recently went into an ER for a sudden stabbing head ache that only lasted 25 minutes and then repeated the next day. The ER did a cat scan and when they found nothing they did an MRI. Then they administered pain meds and released them. Another incident the next day and returned to ER. They ran a cat scan with radio active die and looked at blood vessels.

I do not think your ER took things seriously enough. I think the second ER may know the doctors at the first ER and are being careful not to let you know what the first ER did wrong.

I know of two people who have head aches caused by high spinal fluid pressure. They can treat it with medicine and they can lower the pressure by removing fluid by a spinal tap. The one person I know could not be controlled by medicine and they will only do so many spinal taps. They did a surgery where a pressure relief valve is installed on the spinal fluid. The PRV allows fluid to flow into another area of the body where the fluid is reabsorbed. If you daughter has high spinal fluid pressure, it is a known cause of head aches, and there are treatments. Did they do any tests to attempt to determine why the pressure was high?

As a trouble shooting expert in industry, we always say to fix the obvious even though it does not appear to be related. The rash is one of these. Even though it does not look to be as important to the experts, it very well could be related. Keep pushing them to look at this.