My grandaughter could use some help.

[tcrist]

I am a very private person and I do not normally bring things like this up, but my youngest granddaughter could use the help.
Bristol is 15 months old and has been diagnosed with CDKL5. This is a disease similar to RETT’S syndrome. There are less than 300 documented cases world-wide. Funding for this disease is limited. Bristol will probably never be what you would call “normal”.

If anyone knows of anybody with this type of disease, you know what Bristol is going through. Any help would be appreciated.

I am attaching a link to the CDKL5 fundraiser page in Bristol’s name and also a link to an informational web site. If you know anyone that would like to help, all donations go to CDKL5 research and not to any one person.

If you do not want to donate, that would be ok also. Just a thought once in a while would be great.

Bristol Crist's Fundraising Page
International Foundation for CDKL5 Research

Moderators, if this is improper in any way please delete this post or move it to a proper location.

Thanks in advance, Terry